Anti Leprosy Campaign

Of all the diseases that continue to plague humanity, leprosy has the most notorious history as a cause of deformity, disability, loathing and fear. From ancient times until the recent past, the disease was considered both highly contagious and impossible to cure. Victims were universally shunned, their physical suffering compounded by the misery of being treated as social outcasts. Even at the medical level the sole option for control was the isolation of patients in colonies or leprosaria.

The history of leprosy in Sri Lanka dates back to Dutch colonial times.  The Dutch started the Leprosy Asylum at Hendala in 1701  to imprison the leprosy sufferers for life. Though Dapsone monotherapy was started in late 1940,s segregation was the main mode of control carried out till the early 1970s.

During the last two decades, Sri Lanka has made much progress in eliminating leprosy. The introduction and expansion of Multi Drug Therapy (MDT) in 1982, an effective chemotherapy of short term duration and the launching of the awareness campaign; the Social Marketing Campaign in 1990 to educate the general public about earl signs of leprosy and to dispel misconceptions surrounding the disease, have resulted in the achievement of the leprosy elimination target in 1995 at the national level. This is five years ahead of the targeted year 2000, set by WHO.

The field programme of leprosy is jointly funded by the Sri Lanka Emmaus leprosy control Project and Novartis Foundation for Sustainable Development (NFSD) from Switzerland and  World Health Organisation. The Social Marketing Campaign, Training of health workers of the island on integration and field monitoring activities including the Management Information System  are solely funded by NFSD  

The final phase of leprosy in Sri Lanka

The  final phase of leprosy in Sri Lanka - integration of leprosy services to the General Health Services -  was started in 2001 after two years of planning and strengthening of the infrastructure for integration. Following objectives have been achieved in the initial stage.

1.     Medical officers, registered Medical practitioners , Pharmacists and Dispensers of the country were trained on leprosy and on the new role them under integration.

2.     All health institutions of Sri Lanka were provided with adequate stock of MDT blister packs (Leprosy drugs) - Before integration,it was available only with the leprosy clinic conducted by ALC and some of the skin clinic of the teaching hospitals.

3.     Regional epidemiologists (RE) were on trained monitoring and evaluation of the programme at district level. They are assisted by the PHII/Leprosy.  For this, existed forms  for data collection  were simplified and user freindly software on Leprosy management information system was provided to REs. MOHs were trained on epidemiological assessment.

4.     Public awareenss campaign was launched to  inform the availability of leprosy drugs in health instituitions and also dispel the misconception of leprosy

New case detection increased after integration.. At the end of the second  year after integration (2002) , slight decline was observed. The new case detection rate edropped from 1.2/100,000  (2001) to 1.16/100,000 in 2002. Percentage of multi bacillary patients remained same as the previous year. Deformity rate has come down indicating patients are detected in the early stages respectively. However, traditionally endemic areas like western and Eastern Provinces , child rate has increased indicating that transmission is still continuing. ( See Tables)

Achievements 2002

1.     Training programmes for MOOH on epidemiological assessment were completed in all districts except in the Northern province. In addition to the MOOH, Programme Assistants and Senior PHII attached to the MOH offices were trained.

2.     A team consisting of a Novartis Consultant, D/ALC, MO/CLC visited five districts to review the programme at field level.

3.     Patients’ satisfaction surveys were done in three districts.

4.     Review meetings with REE (Quarterly) and PHII/Leprosy (Monthly) were held on regularly (WHO)

5.     Review meetings in Southern, North-East, Wayamba, North-Central and Western provinces were held with the regional health administrators (WHO)

5.     Training programmes were conducted for General Practitioners in Colombo Municipality.

6.     Deformity registers of ex-patients with deformities were updated. Services were provided to patients with deformities in Galle, Matara, Kurunegala, Gampaha and Colombo Districts under the guidance from Dr.Atul Shah and Mrs. Neela Shah, visiting Novartis Consultants form India.

7.     Sevices for patients with deformities were integrated with GHS.  60% of physiotherapists of the were trained on management of hand and foot deformities during the visits of Dr. Atul Shah. Three programmes have already been completed. Attendance at these seminars wre 100%. The trained physiotherapists provide services not only to leprosy patients but others with hand and foot deformities.

9.     Preliminary steps to integrate MDT distribution into GHS were taken by the end of July. DDG/LS and D/MSD have taken steps to send circulars with regard to integration of MDT distribution. The names of 4 types of MDT blister packs will appear in the annual derugestimate booksin 2003.

10. Six papers on integration of leprosy in Sri Lanka were presented at International Leprosy Congress, held in Brazil. Director/ALC, was invited  as a panellist at the symposium held on integration.

Infrastructure

The two Leprosy Hospitals at Hendala and Mantivu and the Central Leprosy Clinic (Room 21,National Hospital Sri Lanka) function under the administration of the Anti Leprosy Campaign (ALC). This clinics is the main referral centre for patients with complications and for those who need rehabilitation. It also functions as the main operational centre for field activities. Maintenance of the register of leprosy patients, dissemination of leprosy statistics and other information are carried out by the CLC.

Admission to the two Leprosy Hospitals has been completely stopped since the introduction of MDT in 1982. However, patients who have been admitted two decades ago still remain in these hospitals. The Government policy as practised in other countries is to look after the ex-patients for the rest of their life as they  have been admitted against their will. There are only 11 patients at LH, Mantivu and 40 patients at LH, Hendala. Discussions are going  on as to the transfer of staff and patients of LH, Mantivu. Lepers’ Ordinance (1901) is to be repealed soon and the clauses related toleave for leprosy patients in the Establishment code are to be deleted. Preliminary measures were taken on this regard.

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